What is Batten disease?

Batten disease or juvenile neuronal ceroid lipofuscinoses is a neurodegenerative condition that typically begins in childhood. Some characteristics include progressive vision loss, loss of muscle coordination, and seizures.

How do members experience Batten disease?

Top 5 symptoms reported by people with Batten disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Batten disease*

Who has Batten disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 3
30s 1
40s 2
50s 0
60s 0
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 5
Female 2