Hereditary spherocytosis
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is hereditary spherocytosis?
Hereditary spherocytosis is a type of anemia (low number of red blood cells). The red blood cells have an abnormal membrane shaped like spheres and can prematurely breakdown.
Common symptoms reported by people with hereditary spherocytosis
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people with hereditary spherocytosis
Compare treatments taken by people with hereditary spherocytosis
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with hereditary spherocytosis, who reported starting treatments within the last 5 years.
Last updated:
Who has hereditary spherocytosis on PatientsLikeMe?
- 23 patients have this condition
- 1 new patients joined this month
- 12 say spherocytosis is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 3 | |
| 20s | 5 | |
| 30s | 6 | |
| 40s | 3 | |
| 50s | 5 | |
| 60s | 0 | |
| 70+ | 1 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 8 | |
| 20-29 years | 0 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 5 | |
| Female | 18 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 13 | |
| Not Diagnosed | 0 |
These charts show data from spherocytosis patients who have completed their condition history
Last updated: