Hereditary spherocytosis

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What is hereditary spherocytosis?

Hereditary spherocytosis is a type of anemia (low number of red blood cells). The red blood cells have an abnormal membrane shaped like spheres and can prematurely breakdown.

Common symptoms reported by people with hereditary spherocytosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with hereditary spherocytosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with hereditary spherocytosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hereditary spherocytosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Celebrex)
Perceived effectiveness
for pain (1 evaluation)
Side effects
jerky movements overstimulation
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hereditary spherocytosis, who reported starting treatments within the last 5 years.
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Who has hereditary spherocytosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 6
30s 5
40s 2
50s 5
60s 0
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 8
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 5
Female 16

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 13
Not Diagnosed 0

These charts show data from spherocytosis patients who have completed their condition history
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