Hairy cell leukemia

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What is hairy cell leukemia?

Hairy cell leukemia (HCL) is an uncommon blood cancer involving B lymphocytes, a type of white blood cell. HCL represents about 2 percent of all leukemias. The name is derived from the prominent irregular projections seen on the cancerous B cells.

Common symptoms reported by people with hairy cell leukemia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with hairy cell leukemia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Prescription Drug
How many have tried
2
Tried for
hairy cell leukemia (2)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Prescription Drug
How many have tried
1
Tried for
hairy cell leukemia (1)
Treatment name(s)

(Talwin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with hairy cell leukemia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hairy cell leukemia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hairy cell leukemia (2)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
for hairy cell leukemia (1 evaluation)
Side effects
neutropenic fever
Total evaluations
1
Tried for
hairy cell leukemia (1)
Treatment name(s)

(Talwin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hairy cell leukemia, who reported starting treatments within the last 5 years.
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Who has hairy cell leukemia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 4
40s 14
50s 15
60s 7
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 7
40-49 years 4
50-59 years 2
60-69 years 1
70+ years 0

Sex

Distribution of sex

36% Female
64% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 19
Not Diagnosed 0

These charts show data from hairy cell leukemia patients who have completed their condition history
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