Brown-Vialetto-Van Laere syndrome

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What is Brown-Vialetto-Van Laere syndrome?

Brown Vialetto Van Laere syndrome is characterized as nerve problems/damage in the region of the brainstem (pontobulbar region). Some of the nerve problems include hearing loss, breathing problems, and slurred speech.

Common symptoms reported by people with Brown-Vialetto-Van Laere syndrome

Common symptoms
How bad it is
What people are taking for it
Common symptom
How bad it is
What people are taking for it
Acetyl L-Carnitine
Common symptom
How bad it is
What people are taking for it
Escitalopram
Common symptom
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
How bad it is
What people are taking for it
Nothing reported yet
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for Brown-Vialetto-Van Laere syndrome

Let’s build this page together! When you share what it’s like to have Brown-Vialetto-Van Laere syndrome through your profile, those stories and data appear here too.

Got a question about living with Brown-Vialetto-Van Laere syndrome? Members in the forum might have the answers.

Compare treatments taken by people with Brown-Vialetto-Van Laere syndrome

Let’s build this page together! When you share what it’s like to have Brown-Vialetto-Van Laere syndrome through your profile, those stories and data appear here too.

Got a question about living with Brown-Vialetto-Van Laere syndrome? Members in the forum might have the answers.

Who has Brown-Vialetto-Van Laere syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 4 say BVVL is their primary condition
Age
Age Proportion # of patients
<20 2
20s 0
30s 2
40s 0
50s 0
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 2
Female 3
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 2
These charts show data from BVVL patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have Brown-Vialetto-Van Laere syndrome through your profile, those stories and data appear here too.

Got a question about living with Brown-Vialetto-Van Laere syndrome? Members in the forum might have the answers.