Macrophage activation syndrome

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What is macrophage activation syndrome?

Macrophage activation syndrome is the dysregulation of macrophage-lymphocyte interactions leading to uncontrolled proliferation and activation of macrophages and T cells.

Common symptoms reported by people with macrophage activation syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with macrophage activation syndrome

No data

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Compare treatments taken by people with macrophage activation syndrome

No data

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Who has macrophage activation syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 2
30s 2
40s 1
50s 0
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

75% Female
25% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4
Not Diagnosed 0

These charts show data from macrophage activation syndrome patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have macrophage activation syndrome through your profile, those stories and data appear here too.

Got a question about living with macrophage activation syndrome? Members in the forum might have the answers.