Pseudopseudohypoparathyroidism

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What is pseudopseudohypoparathyroidism?

Pseudopseudohypoparathyroidism is genetically similar to pseudohypoparathyroidism; both conditions share the same signs and symptoms such as skeletal defects but with pseudopseudohypoparathyroidism the body is able to manage calcium, phosphorus, and vitamin D levels.

Common symptoms reported by people with pseudopseudohypoparathyroidism

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with pseudopseudohypoparathyroidism

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1) Pain (1)
Treatment name(s)

(Tylenol with Codeine #3)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
Fatigue (1)
Treatment name(s)

(Therapeutic Massage)
Type
Physical Therapy
How many have tried
1
Tried for
Pain (1)

Data from patients with pseudopseudohypoparathyroidism, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with pseudopseudohypoparathyroidism

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Fatigue
Total evaluations
1
Tried for
Pain (2)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Insomnia (1) Pain (1)
Treatment name(s)

(Tylenol with Codeine #3)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
Fatigue (1)
Treatment name(s)

(Therapeutic Massage)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with pseudopseudohypoparathyroidism, who reported starting treatments within the last 5 years.
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Who has pseudopseudohypoparathyroidism on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 0
30s 2
40s 2
50s 2
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

88% Female
13% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6
Not Diagnosed 0

These charts show data from pseudopseudohypoparathyroidism patients who have completed their condition history
Last updated:
No data

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