Goods syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Goods syndrome?

Good’s syndrome also known as thymoma with immunodeficiency is characterized as B and T cell immunodeficiency in adults. These cells help the body fight against illness. There is an increased susceptibility to bacterial infections with Good's syndrome.

Common symptoms reported by people with Goods syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Goods syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Equipment
How many have tried
1
Tried for
pain (1)

Data from patients with Goods syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Goods syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Goods syndrome, who reported starting treatments within the last 5 years.
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Who has Goods syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 60
30s 33
40s 15
50s 10
60s 10
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 10
20-29 years 8
30-39 years 4
40-49 years 2
50-59 years 4
60-69 years 2
70+ years 1

Sex

Distribution of sex

38% Female
62% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 48
Not Diagnosed 51

These charts show data from Goods syndrome patients who have completed their condition history
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