PCOS (Polycystic Ovary Syndrome)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is PCOS (Polycystic Ovary Syndrome)?

A complex disorder characterized by the presence of multiple cysts on the ovaries, irregular or no menstrual periods and regularly associated with excessive amounts of body hair (hirsuitism), excessive body weight, infertility and insulin resistance.

What is it like to have PCOS (Polycystic Ovary Syndrome)?

Common symptoms How bad it is What people are taking for it
Clonazepam, Lorazepam, Alprazolam
Multivitamins, Rest, Vitamin B Complex
Duloxetine, Citalopram, Bupropion
Amitriptyline, Trazodone, Zolpidem
Tramadol, Hydrocodone-Acetaminophen, Amitriptyline

What do patients take to treat PCOS (Polycystic Ovary Syndrome) and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations

(Cetapin, Stagid, Merckformin XR, Riomet)

33

(Depo-Provera, Depo-subQ provera 104, Provera)

6

(Spiractin, Verospiron, Aldactone)

4

These charts show data from PCOS (Polycystic Ovary Syndrome) patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has PCOS (Polycystic Ovary Syndrome) on PatientsLikeMe?

  • 1,105 patients have this condition
  • 16 new patients joined this month
  • 272 say PCOS (Polycystic Ovary Syndrome) is their primary condition

Age
Age Proportion # of patients
<20 10
20s 279
30s 456
40s 237
50s 51
60s 8
70+ 1

Gender

Distribution of females vs. males

100% Females
0% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 442
20-29 years 216
30-39 years 52
40-49 years 8
50-59 years 0
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 853
Not Diagnosed 25

These charts show data from PCOS (Polycystic Ovary Syndrome) patients who have completed their condition history
Last updated: