Ocular myasthenia

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What is ocular myasthenia?

Ocular myasthenia gravis is an autoimmune eye disorder that can occur alone or as a feature of generalized myasthenia gravis. It is uncertain why ocular muscles are frequently involved in myasthenia and why the disease stays localized to the eye muscles in 15 percent of cases.

Common symptoms reported by people with ocular myasthenia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with ocular myasthenia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
2
Tried for
ocular myasthenia (2)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
2
Tried for
ocular myasthenia (2)
Treatment name(s)

(Neoral)
Type
Prescription Drug
How many have tried
1
Tried for
ocular myasthenia (1)
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
1
Tried for
ocular myasthenia (1)
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
1
Tried for
ocular myasthenia (1)
Treatment name(s)

(Mestinon)
Type
Prescription Drug
How many have tried
1
Tried for
ocular myasthenia (1)

Data from patients with ocular myasthenia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with ocular myasthenia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Imuran)
Perceived effectiveness
for ocular myasthenia (1 evaluation)
Side effects
nausea and vomiting
Total evaluations
1
Tried for
ocular myasthenia (2)
Treatment name(s)

(Deltasone)
Perceived effectiveness
for ocular myasthenia (2 evaluations)
Side effects
boil dehydration 3 more
Total evaluations
2
Tried for
ocular myasthenia (2)
Treatment name(s)

(Neoral)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
ocular myasthenia (1)
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for ocular myasthenia (1 evaluation)
Side effects
nausea
Total evaluations
1
Tried for
ocular myasthenia (1)
Treatment name(s)

(CellCept)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
ocular myasthenia (1)
Treatment name(s)

(Mestinon)
Perceived effectiveness
for ocular myasthenia (1 evaluation)
Side effects
Total evaluations
1
Tried for
ocular myasthenia (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with ocular myasthenia, who reported starting treatments within the last 5 years.
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Who has ocular myasthenia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 2
30s 3
40s 5
50s 11
60s 6
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 3
30-39 years 2
40-49 years 4
50-59 years 2
60-69 years 3
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 12
Female 23

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12
Not Diagnosed 2

These charts show data from ocular myasthenia patients who have completed their condition history
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