Cowden syndrome

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What is Cowden syndrome?

Cowden syndrome is characterized by multiple noncancerous, tumor-like growths (hamartomas) and an increased risk to certain benign and cancerous tumors, e.g. breast, thyroid, and uterine.

Common symptoms reported by people with Cowden syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Cowden syndrome

No data

Let’s build this page together! When you share what it’s like to have Cowden syndrome through your profile, those stories and data appear here too.

Got a question about living with Cowden syndrome? Members in the forum might have the answers.

Compare treatments taken by people with Cowden syndrome

No data

Let’s build this page together! When you share what it’s like to have Cowden syndrome through your profile, those stories and data appear here too.

Got a question about living with Cowden syndrome? Members in the forum might have the answers.

Who has Cowden syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 4
40s 6
50s 0
60s 3
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 2
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 12

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4
Not Diagnosed 1

These charts show data from Cowden syndrome patients who have completed their condition history
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