Phyllodes tumor

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What is phyllodes tumor?

Phyllodes is Greek for "leaflike", the phyllodes tumor grows in a leaflike pattern within the connective tissue of the breast. It is generally considered a non cancerous tumor, but in rare cases may be malignant. These tumors may recur.

Common symptoms reported by people with phyllodes tumor

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with phyllodes tumor

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Bilateral mastectomy)
Type
Surgery
How many have tried
1
Tried for
phyllodes tumor (1)
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Kirkland Vitamin B12 sublingual)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(High Potency Vitamin B Complex)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)

Data from patients with phyllodes tumor, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with phyllodes tumor

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (3 evaluations)
Side effects
fluid retention (edema)
Total evaluations
3
Tried for
pain (1)
Treatment name(s)

(Bilateral mastectomy)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
phyllodes tumor (1)
Treatment name(s)

(Provigil)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
dry mouth excessive dry mouth
Total evaluations
2
Tried for
fatigue (1)
Treatment name(s)

(Lyrica)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Kirkland Vitamin B12 sublingual)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(High Potency Vitamin B Complex)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with phyllodes tumor, who reported starting treatments within the last 5 years.
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Who has phyllodes tumor on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 6
40s 12
50s 9
60s 5
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 3
40-49 years 3
50-59 years 3
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 34

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 15
Not Diagnosed 7

These charts show data from phyllodes tumor patients who have completed their condition history
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