Optic disc drusen

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is optic disc drusen?

Optic disc drusen is characterized as abnormal deposits of protein-like material within the optic nerve head. Over time these deposits calcify in the optic disc and may affect peripheral vision.

Common symptoms reported by people with optic disc drusen

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with optic disc drusen

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(FeraMAX)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)

Data from patients with optic disc drusen, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with optic disc drusen

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(FeraMAX)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with optic disc drusen, who reported starting treatments within the last 5 years.
Last updated:

Who has optic disc drusen on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 5
30s 2
40s 6
50s 5
60s 2
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 2
30-39 years 2
40-49 years 1
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

71% Female
29% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 14
Not Diagnosed 0

These charts show data from optic disc drusen patients who have completed their condition history
Last updated: