Alexander disease

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What is Alexander disease?

Alexander disease is a condition affecting the white matter of the brain and the destruction of myelin. Myelin is the covering that insulates nerve fibers and allows for the rapid transmission of nerve impulses. Some symptoms include seizures, and loss of motor and intellectual disabilities.

Common symptoms reported by people with Alexander disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Alexander disease

No data

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Got a question about living with Alexander disease? Members in the forum might have the answers.

Compare treatments taken by people with Alexander disease

No data

Let’s build this page together! When you share what it’s like to have Alexander disease through your profile, those stories and data appear here too.

Got a question about living with Alexander disease? Members in the forum might have the answers.

Who has Alexander disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 3
30s 2
40s 0
50s 0
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

50% Female
50% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5
Not Diagnosed 0

These charts show data from Alexander disease patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have Alexander disease through your profile, those stories and data appear here too.

Got a question about living with Alexander disease? Members in the forum might have the answers.