Hyperinsulinemic hypoglycemia with nesidioblastosis

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What is hyperinsulinemic hypoglycemia with nesidioblastosis?

Nesidioblastosis is a condition of abnormal proliferation of islet of Langerhans cells in the pancreas, as a result excess insulin is produced which causes very low blood sugar levels. It usually occurs in the pediatric population as well as in adults who have undergone gastric bypass surgery.

Common symptoms reported by people with hyperinsulinemic hypoglycemia with nesidioblastosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with hyperinsulinemic hypoglycemia with nesidioblastosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)
Type
Equipment
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Percocet)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Paxil)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)

Data from patients with hyperinsulinemic hypoglycemia with nesidioblastosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hyperinsulinemic hypoglycemia with nesidioblastosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Celexa)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Percocet)
Perceived effectiveness
for pain (1 evaluation)
Side effects
constipation itching
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Paxil)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
dry eye syndrome dry mouth 1 more
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(Zoloft)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
chronic constipation
Total evaluations
1
Tried for
depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hyperinsulinemic hypoglycemia with nesidioblastosis, who reported starting treatments within the last 5 years.
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Who has hyperinsulinemic hypoglycemia with nesidioblastosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 2
40s 3
50s 0
60s 7
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 0
30-39 years 1
40-49 years 1
50-59 years 3
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 3
Female 9

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 7
Not Diagnosed 1

These charts show data from hyperinsulinemic hypoglycemia with nesidioblastosis patients who have completed their condition history
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