Klippel-Trenaunay-Weber syndrome

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What is Klippel-Trenaunay-Weber syndrome?

Klippel-Trenaunay-Weber syndrome (KTWS) is characterized by a reddish-purplish birthmark (port-wine stain) , swollen, twisted, and sometimes painful blood vessels (varicose veins); excessive growth of soft tissue and bone of the involved extremity (bony and soft tissue hypertrophy).

Common symptoms reported by people with Klippel-Trenaunay-Weber syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Klippel-Trenaunay-Weber syndrome

No data

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Compare treatments taken by people with Klippel-Trenaunay-Weber syndrome

No data

Let’s build this page together! When you share what it’s like to have Klippel-Trenaunay-Weber syndrome through your profile, those stories and data appear here too.

Got a question about living with Klippel-Trenaunay-Weber syndrome? Members in the forum might have the answers.

Who has Klippel-Trenaunay-Weber syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 3
30s 1
40s 2
50s 1
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 3
Female 5

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 1

These charts show data from Klippel-Trenaunay-Weber syndrome patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have Klippel-Trenaunay-Weber syndrome through your profile, those stories and data appear here too.

Got a question about living with Klippel-Trenaunay-Weber syndrome? Members in the forum might have the answers.