Fragile X syndrome

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What is fragile X syndrome?

Fragile X syndrome is a genetic condition characterized as changes on the X chromosome. Some signs and symptoms include a long face, prominent ears, developmental delay, and social and behavioral issues.

Common symptoms reported by people with fragile X syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fragile X syndrome

Let’s build this page together! When you share what it’s like to have fragile X syndrome through your profile, those stories and data appear here too.

Got a question about living with fragile X syndrome? Members in the forum might have the answers.

Compare treatments taken by people with fragile X syndrome

Let’s build this page together! When you share what it’s like to have fragile X syndrome through your profile, those stories and data appear here too.

Got a question about living with fragile X syndrome? Members in the forum might have the answers.

Who has fragile X syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 1
30s 2
40s 3
50s 3
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 7

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 2

These charts show data from fragile X syndrome patients who have completed their condition history
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