Lupus profundus

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  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is lupus profundus?

Lupus profundus is a chronic form of cutaneous lupus erythematosus characterized by the presence of discoid skin plaques with varying degrees of swelling, redness, scaliness, and skin atrophy. This co-occurs with panniculitis; the inflammation of the panniculus, the fat under the skin.

Common symptoms reported by people with lupus profundus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with lupus profundus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
lupus profundus (1)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
1
Tried for
lupus profundus (1)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)

Data from patients with lupus profundus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with lupus profundus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
lupus profundus (1)
Treatment name(s)

(Lexapro)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for lupus profundus (1 evaluation)
Side effects
Total evaluations
1
Tried for
lupus profundus (1)
Treatment name(s)

(Ativan)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with lupus profundus, who reported starting treatments within the last 5 years.
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Who has lupus profundus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 25
30s 76
40s 119
50s 92
60s 40
70+ 6
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 7
30-39 years 6
40-49 years 3
50-59 years 6
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 20
Female 344

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 35
Not Diagnosed 14

These charts show data from lupus profundus patients who have completed their condition history
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