Diffuse idiopathic skeletal hyperostosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is diffuse idiopathic skeletal hyperostosis?

Diffuse idiopathic skeletal hyperostosis (DISH) is the hardening (calcification) of ligaments in areas where they attach to your spine. Symptoms include back stiffness, pain, decreased range of motion, difficulty swallowing or hoarse voice.

Common symptoms reported by people with diffuse idiopathic skeletal hyperostosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with diffuse idiopathic skeletal hyperostosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Spinal Chiropractic Therapy)
Type
Physical Therapy
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Dilaudid)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Statex)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Centrum Multivitamin)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Aleve)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
1
Treatment name(s)

(Nucynta)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with diffuse idiopathic skeletal hyperostosis, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with diffuse idiopathic skeletal hyperostosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Spinal Chiropractic Therapy)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Celexa)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
depressed mood (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Dilaudid)
Perceived effectiveness
for pain (1 evaluation)
Side effects
excessive yawning itching
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Statex)
Perceived effectiveness
for pain (1 evaluation)
Side effects
blood pressure decreased fainting
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Centrum Multivitamin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(CellCept)
Perceived effectiveness
No evaluations
Side effects
diarrhea fever/chills 2 more
Total evaluations
1
Treatment name(s)

(Aleve)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
for diffuse idiopathic skeletal hyperostosis (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Nucynta)
Perceived effectiveness
for pain (1 evaluation)
Side effects
hyperactivity
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with diffuse idiopathic skeletal hyperostosis, who reported starting treatments within the last 5 years.
Last updated:

Who has diffuse idiopathic skeletal hyperostosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 10
50s 10
60s 14
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 4
30-39 years 5
40-49 years 5
50-59 years 3
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 19
Female 22

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 25
Not Diagnosed 1

These charts show data from DISH patients who have completed their condition history
Last updated: