Holt–Oram syndrome

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What is Holt–Oram syndrome?

Holt–Oram syndrome, is a genetic disorder characterized by skeletal abnormalities of the upper limbs and heart.

Common symptoms reported by people with Holt–Oram syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Holt–Oram syndrome

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Compare treatments taken by people with Holt–Oram syndrome

Let’s build this page together! When you share what it’s like to have Holt–Oram syndrome through your profile, those stories and data appear here too.

Got a question about living with Holt–Oram syndrome? Members in the forum might have the answers.

Who has Holt–Oram syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 2
40s 1
50s 0
60s 0
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 5

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1
Not Diagnosed 2

These charts show data from Holt–Oram syndrome patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have Holt–Oram syndrome through your profile, those stories and data appear here too.

Got a question about living with Holt–Oram syndrome? Members in the forum might have the answers.