Medullary sponge kidney

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is medullary sponge kidney?

Medullary Sponge Kidney is a condition of the kidneys. Cysts form in the collecting ducts and the tubular structures within the kidneys (tubules) that collect urine. Some symptoms include blood in the urine, kidney stones, and urinary tract infections.

Common symptoms reported by people with medullary sponge kidney

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with medullary sponge kidney

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Urocit-K)
Type
Prescription Drug
How many have tried
1
Tried for
medullary sponge kidney (1)

Data from patients with medullary sponge kidney, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with medullary sponge kidney

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (3)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for pain (2 evaluations)
Side effects
nightmares upset stomach
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(Urocit-K)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
medullary sponge kidney (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with medullary sponge kidney, who reported starting treatments within the last 5 years.
Last updated:

Who has medullary sponge kidney on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 3
30s 32
40s 26
50s 16
60s 9
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 10
20-29 years 11
30-39 years 8
40-49 years 6
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 8
Female 80

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 42
Not Diagnosed 4

These charts show data from medullary sponge kidney patients who have completed their condition history
Last updated: