What is Pierre Robin syndrome?

Pierre Robin syndrome (PRS) is a genetic condition affecting facial features. It is characterized as a smaller than normal jaw, an underdeveloped tongue that falls back in the throat, and a cleft soft palate. Often, this can lead to difficulty with breathing and feeding.

How do members experience Pierre Robin syndrome?

Top 5 symptoms reported by people with Pierre Robin syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Pierre Robin syndrome*

Who has Pierre Robin syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 2
40s 2
50s 1
60s 0
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 0
Female 6