Cholangiocarcinoma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is cholangiocarcinoma?

Cholangiocarcinoma is a cancerous growth in one of the tubes (ducts) that carries bile from the liver to the small intestine. Bile is a substance that is created by the body to digest fats in foods and helps the body get rid of waste material.

Common symptoms reported by people with cholangiocarcinoma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with cholangiocarcinoma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Surgery
How many have tried
1
Tried for
cholangiocarcinoma (1)

Data from patients with cholangiocarcinoma, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with cholangiocarcinoma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
cholangiocarcinoma (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with cholangiocarcinoma, who reported starting treatments within the last 5 years.
Last updated:

Who has cholangiocarcinoma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 3
40s 7
50s 17
60s 20
70+ 9
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 1
30-39 years 0
40-49 years 3
50-59 years 5
60-69 years 2
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 22
Female 36

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 22
Not Diagnosed 0

These charts show data from cholangiocarcinoma patients who have completed their condition history
Last updated: