Prurigo nodularis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is prurigo nodularis?

Prurigo nodularis (PN) is a skin condition in which hard crusty lumps form on the skin that itches intensely. PN may itch constantly, mostly at night, or only when a light brush of clothing sets off a round of severe itch. For many, itching only ends when scratched to the point of bleeding.

Common symptoms reported by people with prurigo nodularis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with prurigo nodularis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1) pain (1)
Treatment name(s)
Type
Lifestyle Modification
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Cannabidiol oil)
Type
Other
How many have tried
1
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Clobex)
Type
Prescription Drug
How many have tried
1
Tried for
prurigo nodularis (1)
Treatment name(s)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Lifestyle Modification
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
1 more

Data from patients with prurigo nodularis, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with prurigo nodularis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (4 evaluations)
Side effects
grogginess
Total evaluations
4
Tried for
anxious mood (1) pain (1)
Treatment name(s)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
feelings of deep sadness feelings of uselessness 4 more
Total evaluations
2
Tried for
fatigue (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
shakiness
Total evaluations
3
Tried for
depressed mood (1)
Treatment name(s)

(Cannabidiol oil)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
Total evaluations
3
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Clobex)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
prurigo nodularis (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (4 evaluations)
Side effects
constipation
Total evaluations
4
Tried for
pain (1)
Treatment name(s)

(Mobic)
Perceived effectiveness
for pain (2 evaluations)
Side effects
stomach pain upset stomach
Total evaluations
4
Tried for
pain (1)
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1) depressed mood (1)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with prurigo nodularis, who reported starting treatments within the last 5 years.
Last updated:

Who has prurigo nodularis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 2
30s 3
40s 7
50s 12
60s 8
70+ 9
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 1
30-39 years 3
40-49 years 2
50-59 years 2
60-69 years 3
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 6
Female 40

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 15
Not Diagnosed 0

These charts show data from prurigo nodularis patients who have completed their condition history
Last updated: