Medullary cystic kidney disease

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What is medullary cystic kidney disease?

Medullary cystic kidney disease (MCKD) is an inherited condition in which cysts develop in the center of each kidney and eventually causes scarring and end stage renal disease. The kidneys function improperly and produce non concentrated urine.

Common symptoms reported by people with medullary cystic kidney disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with medullary cystic kidney disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with medullary cystic kidney disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with medullary cystic kidney disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for pain (2 evaluations)
Side effects
metallic taste in mouth
Total evaluations
2
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with medullary cystic kidney disease, who reported starting treatments within the last 5 years.
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Who has medullary cystic kidney disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 1
40s 4
50s 5
60s 3
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 1
30-39 years 1
40-49 years 0
50-59 years 2
60-69 years 0
70+ years 0

Sex

Distribution of sex

69% Female
31% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5
Not Diagnosed 1

These charts show data from medullary cystic kidney disease patients who have completed their condition history
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