Acoustic neuroma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is acoustic neuroma?

Acoustic neuroma is a non-cancerous tumor that develops on the nerve that connects the ear to the brain. The tumor usually grows slowly. As it grows, it presses against the hearing and balance nerves.

Common symptoms reported by people with acoustic neuroma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with acoustic neuroma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Aspirin Low Dose)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Equipment
How many have tried
1
Tried for
acoustic neuroma (1)
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Intensity-Modulated Radiation)
Type
Procedures
How many have tried
1
Tried for
acoustic neuroma (1)
Treatment name(s)

(Stomach tumor removal/resection)
Type
Surgery
How many have tried
1
Tried for
acoustic neuroma (1)

Data from patients with acoustic neuroma, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with acoustic neuroma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Aspirin Low Dose)
Perceived effectiveness
for pain (1 evaluation)
Side effects
gastrointestinal (GI) bleeding
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Celexa)
Perceived effectiveness
for depressed mood (6 evaluations)
Side effects
fatigue
Total evaluations
6
Tried for
depressed mood (1)
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
acoustic neuroma (1)
Treatment name(s)

(Provigil)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
agitation with irritability
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(Intensity-Modulated Radiation)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
acoustic neuroma (1)
Treatment name(s)

(Stomach tumor removal/resection)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
acoustic neuroma (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with acoustic neuroma, who reported starting treatments within the last 5 years.
Last updated:

Who has acoustic neuroma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 5
40s 19
50s 29
60s 22
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 2
30-39 years 9
40-49 years 8
50-59 years 8
60-69 years 4
70+ years 0

Sex

Distribution of sex

70% Female
30% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 48
Not Diagnosed 0

These charts show data from acoustic neuroma patients who have completed their condition history
Last updated: