Idiopathic pulmonary hemosiderosis

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What is idiopathic pulmonary hemosiderosis?

Idiopathic pulmonary hemosiderosis is a rare condition found primarily in children that causes recurrent blood collection within the lung's alveoli; this causes a disruption in the exchange of O2 and CO2. Common symptoms include, cough, shortness of breath, and anemia.

Common symptoms reported by people with idiopathic pulmonary hemosiderosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with idiopathic pulmonary hemosiderosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Advair Diskus)
Type
Prescription Drug
How many have tried
1

Data from patients with idiopathic pulmonary hemosiderosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with idiopathic pulmonary hemosiderosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Advair Diskus)
Perceived effectiveness
for idiopathic pulmonary hemosiderosis (2 evaluations)
Side effects
Total evaluations
2
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with idiopathic pulmonary hemosiderosis, who reported starting treatments within the last 5 years.
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Who has idiopathic pulmonary hemosiderosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 1
40s 1
50s 1
60s 3
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 3

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4
Not Diagnosed 0

These charts show data from idiopathic pulmonary hemosiderosis patients who have completed their condition history
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No data

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