Conn's syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Conn's syndrome?

Conn's syndrome is a disease of the adrenal glands involving excess production of a hormone, called aldosterone. Another name for the condition is primary hyperaldosteronism.

Common symptoms reported by people with Conn's syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Conn's syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Aleve)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Aldactone)
Type
Prescription Drug
How many have tried
1
Tried for
Conn's syndrome (1)

Data from patients with Conn's syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Conn's syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
tiredness
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Advil)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Aleve)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Aldactone)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Conn's syndrome (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Conn's syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has Conn's syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 2
40s 12
50s 11
60s 8
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 4
30-39 years 6
40-49 years 5
50-59 years 5
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 10
Female 27

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 25
Not Diagnosed 0

These charts show data from Conn's syndrome patients who have completed their condition history
Last updated: