Klippel-Feil syndrome

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What is Klippel-Feil syndrome?

Klippel Feil Syndrome is characterized as a short, webbed neck; restricted motion in the neck region (cervical spine); and a low hairline (back of head). Type I is a massive fusion of the cervical spine, type 2 is the fusion of 1 or 2 vertebrae, and type 3 includes thoracic/lumbar spine deformities.

Common symptoms reported by people with Klippel-Feil syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Klippel-Feil syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2) pain (1)
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Valerian Root)
Type
Supplement
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1) pain (1)

Data from patients with Klippel-Feil syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Klippel-Feil syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
weight gain
Total evaluations
1
Tried for
depressed mood (2) pain (1)
Treatment name(s)

(Advil)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Valerian Root)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1) pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Klippel-Feil syndrome, who reported starting treatments within the last 5 years.
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Who has Klippel-Feil syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 1
30s 10
40s 9
50s 11
60s 3
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 12
20-29 years 4
30-39 years 1
40-49 years 3
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 35

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 24
Not Diagnosed 3

These charts show data from Klippel-Feil syndrome patients who have completed their condition history
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