Klippel-Feil syndrome

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What is Klippel-Feil syndrome?

Klippel Feil Syndrome is characterized as a short, webbed neck; restricted motion in the neck region (cervical spine); and a low hairline (back of head). Type I is a massive fusion of the cervical spine, type 2 is the fusion of 1 or 2 vertebrae, and type 3 includes thoracic/lumbar spine deformities.

Common symptoms reported by people with Klippel-Feil syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for Klippel-Feil syndrome

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Compare treatments taken by people with Klippel-Feil syndrome

Let’s build this page together! When you share what it’s like to have Klippel-Feil syndrome through your profile, those stories and data appear here too.

Got a question about living with Klippel-Feil syndrome? Members in the forum might have the answers.

Who has Klippel-Feil syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 68 say Klippel-Feil syndrome is their primary condition

Age
Age Proportion # of patients
<20 4
20s 7
30s 14
40s 19
50s 18
60s 15
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 14
20-29 years 4
30-39 years 2
40-49 years 3
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 14
Female 68

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 28
Not Diagnosed 3

These charts show data from Klippel-Feil syndrome patients who have completed their condition history
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