What is Klippel-Feil syndrome?

Klippel Feil Syndrome is characterized as a short, webbed neck; restricted motion in the neck region (cervical spine); and a low hairline (back of head). Type I is a massive fusion of the cervical spine, type 2 is the fusion of 1 or 2 vertebrae, and type 3 includes thoracic/lumbar spine deformities.

How do members experience Klippel-Feil syndrome?

Top 5 symptoms reported by people with Klippel-Feil syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Klippel-Feil syndrome*

Who has Klippel-Feil syndrome on PatientsLikeMe?


Age Proportion # of patients
<20 3
20s 8
30s 16
40s 19
50s 19
60s 14
70+ 4

Distribution of sex


Sex Proportion # of patients
Male 15
Female 70