Meningioma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is meningioma?

Meningiomas are tumors of the meninges, the surface coverings of the central nervous system (brain and spinal). The cell of origin for the meningioma is the arachnoid cap cell. Meningiomas are usually non cancerous (benign).

Common symptoms reported by people with meningioma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with meningioma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Essential Oils)
Type
Other
How many have tried
1
Tried for
fatigue (1) pain (1)
1 more
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Right frontal craniotomy)
Type
Surgery
How many have tried
1
Tried for
meningioma (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Pill Organizer)
Type
Other
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Morphine ER)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Embeda)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with meningioma, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with meningioma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lyrica)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Essential Oils)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1) pain (1)
1 more
Treatment name(s)

(Celexa)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(Right frontal craniotomy)
Perceived effectiveness
for meningioma (1 evaluation)
Side effects
headaches
Total evaluations
1
Tried for
meningioma (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Pill Organizer)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Provigil)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
chest tightness hives (urticaria) 1 more
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(Morphine ER)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Embeda)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with meningioma, who reported starting treatments within the last 5 years.
Last updated:

Who has meningioma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 4
30s 16
40s 40
50s 67
60s 45
70+ 16
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 2
30-39 years 11
40-49 years 19
50-59 years 8
60-69 years 4
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 31
Female 163

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 152
Not Diagnosed 5

These charts show data from meningioma patients who have completed their condition history
Last updated: