What is distal arthrogryposis?

Distal arthrogryposis syndrome is a rare genetic disorder in which affected individuals are born with a characteristic bending at the joints of the hands and feet. A contracture is the word used to describe what happens at the joints to cause this bending.

How do members experience distal arthrogryposis?

Top 5 symptoms reported by people with distal arthrogryposis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for distal arthrogryposis*

Who has distal arthrogryposis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 1
40s 1
50s 3
60s 1
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 2
Female 5