Congenital afibrinogenemia

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What is congenital afibrinogenemia?

Congenital afibrinogenemia is an inherited (genetic) blood disorder in which the blood doesn't clot normally because there is a lack of blood clotting factor I. Therefore patients are at a higher risk for bleeding. Symptoms include bruising, and excessive bleeding after surgery or injury.

Common symptoms reported by people with congenital afibrinogenemia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with congenital afibrinogenemia

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Compare treatments taken by people with congenital afibrinogenemia

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Got a question about living with congenital afibrinogenemia? Members in the forum might have the answers.

Who has congenital afibrinogenemia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 0
50s 2
60s 3
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 2
Female 4

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 1

These charts show data from congenital afibrinogenemia patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have congenital afibrinogenemia through your profile, those stories and data appear here too.

Got a question about living with congenital afibrinogenemia? Members in the forum might have the answers.