Subacute cutaneous lupus erythematosus

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is subacute cutaneous lupus erythematosus?

Subacute cutaneous lupus erythematosus (SCLE) is a variant of systemic lupus erythematosus. The body's immune system mistakenly attacks healthy skin tissue. Factors such as skin exposure, and certain drugs may exacerbate the condition. A common symptom of SCLE are skin lesions that are scaly.

Common symptoms reported by people with subacute cutaneous lupus erythematosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with subacute cutaneous lupus erythematosus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
16
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
2
Tried for
pain (2) anxious mood (1)
Treatment name(s)

(Plasmoquine)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
1

Data from patients with subacute cutaneous lupus erythematosus, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with subacute cutaneous lupus erythematosus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for subacute cutaneous lupus erythematosus (4 evaluations)
Side effects
fatigue blurry vision 3 more
Total evaluations
7
Treatment name(s)

(Ultram)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (4)
Treatment name(s)

(Imuran)
Perceived effectiveness
for subacute cutaneous lupus erythematosus (1 evaluation)
Side effects
Total evaluations
5
Treatment name(s)

(Marijuana)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (2) anxious mood (1)
Treatment name(s)

(Plasmoquine)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
Treatment name(s)

(Ativan)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (2)
Treatment name(s)

(Zoloft)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (2)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with subacute cutaneous lupus erythematosus, who reported starting treatments within the last 5 years.
Last updated:

Who has subacute cutaneous lupus erythematosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 72
30s 240
40s 513
50s 414
60s 169
70+ 21
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 9
20-29 years 21
30-39 years 25
40-49 years 20
50-59 years 12
60-69 years 1
70+ years 0

Sex

Distribution of sex

97% Female
3% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 112
Not Diagnosed 12

These charts show data from subacute cutaneous lupus erythematosus patients who have completed their condition history
Last updated: