Factor XI deficiency

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What is factor XI deficiency?

Factor XI Deficiency is a rare autosomal recessive disease, which causes Hemophilia C. Factor XI is produced by the liver and is part of a chain of clotting factor responsible for stopping bleeding by forming a clot after an injury or surgery.

Common symptoms reported by people with factor XI deficiency

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with factor XI deficiency

Let’s build this page together! When you share what it’s like to have factor XI deficiency through your profile, those stories and data appear here too.

Got a question about living with factor XI deficiency? Members in the forum might have the answers.

Compare treatments taken by people with factor XI deficiency

Let’s build this page together! When you share what it’s like to have factor XI deficiency through your profile, those stories and data appear here too.

Got a question about living with factor XI deficiency? Members in the forum might have the answers.

Who has factor XI deficiency on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 1
30s 2
40s 3
50s 2
60s 1
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 1
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 11

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 10
Not Diagnosed 1

These charts show data from factor XI deficiency patients who have completed their condition history
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