Spinal muscular atrophy type 1

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What is spinal muscular atrophy type 1?

Spinal Muscular Atrophy Type 1 is an inherited (genetic) condition that affects the nerve cells (motor neurons) in your spinal cord. Onset is evident from birth to the first few months. Symptoms include floppy limbs and trunk, and difficulty feeding and breathing.

Common symptoms reported by people with spinal muscular atrophy type 1

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with spinal muscular atrophy type 1

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Centrum Multivitamin)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)

Data from patients with spinal muscular atrophy type 1, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with spinal muscular atrophy type 1

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Centrum Multivitamin)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Hospitalization
Total evaluations
1
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with spinal muscular atrophy type 1, who reported starting treatments within the last 5 years.
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Who has spinal muscular atrophy type 1 on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 4
30s 2
40s 1
50s 0
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

50% Female
50% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1
Not Diagnosed 3

These charts show data from spinal muscular atrophy type 1 patients who have completed their condition history
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