Migraine

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is migraine?

Migraine is a neural condition characterized by recurrent headache and may be accompanied by nausea, noise sensitivity, and photophobia, sometimes preceded by sensory disturbances (aura).  Triggers of migraine episodes vary widely and may include allergic reactions, diet, alcohol, and bright lights.

Common symptoms reported by people with migraine

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with migraine

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Topamax)
Type
Prescription Drug
How many have tried
153
Tried for
migraine headaches (139) migraine (15)
5 more
Treatment name(s)

(Imitrex)
Type
Prescription Drug
How many have tried
143
Tried for
migraine (111) migraine headaches (57)
3 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
83
Tried for
pain (63) migraine (16)
3 more
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
72
Tried for
migraine (52) pain (38)
1 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
71
Tried for
migraine headaches (26) pain (25)
3 more
Treatment name(s)

(Naproxen Prescription)
Type
Over the Counter Drug
How many have tried
67
Tried for
migraine (52) pain (18)
2 more
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
66
Tried for
migraine (41) pain (35)
1 more
Treatment name(s)

(Maxalt)
Type
Prescription Drug
How many have tried
65
Tried for
migraine (50) migraine headaches (26)
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
61
Tried for
migraine headaches (55) anxious mood (9)
1 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
61
Tried for
pain (54) migraine headaches (7)
1 more

Data from patients with migraine, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with migraine

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Topamax)
Perceived effectiveness
for migraine headaches (102 evaluations)
Side effects
decreased appetite weight loss 99 more
Total evaluations
112
Tried for
migraine headaches (139) migraine (15)
5 more
Treatment name(s)

(Imitrex)
Perceived effectiveness
for migraine (54 evaluations)
Side effects
fatigue drowsiness 43 more
Total evaluations
72
Tried for
migraine (111) migraine headaches (57)
3 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (41 evaluations)
Side effects
weight gain drowsiness 30 more
Total evaluations
50
Tried for
pain (63) migraine (16)
3 more
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for migraine (27 evaluations)
Side effects
chronic kidney disease elevated liver enzymes 5 more
Total evaluations
41
Tried for
migraine (52) pain (38)
1 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for migraine headaches (20 evaluations)
Side effects
drowsiness dry mouth 23 more
Total evaluations
62
Tried for
migraine headaches (26) pain (25)
3 more
Treatment name(s)

(Naproxen Prescription)
Perceived effectiveness
for migraine (15 evaluations)
Side effects
stomach pain allergic reaction 5 more
Total evaluations
27
Tried for
migraine (52) pain (18)
2 more
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for migraine (28 evaluations)
Side effects
nausea abdominal pain 15 more
Total evaluations
44
Tried for
migraine (41) pain (35)
1 more
Treatment name(s)

(Maxalt)
Perceived effectiveness
for migraine (25 evaluations)
Side effects
nausea dizziness 18 more
Total evaluations
37
Tried for
migraine (50) migraine headaches (26)
Treatment name(s)

(Inderal)
Perceived effectiveness
for migraine headaches (32 evaluations)
Side effects
dizziness anxious mood 23 more
Total evaluations
39
Tried for
migraine headaches (55) anxious mood (9)
1 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (30 evaluations)
Side effects
nausea sleepiness 10 more
Total evaluations
34
Tried for
pain (54) migraine headaches (7)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with migraine, who reported starting treatments within the last 5 years.
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Who has migraine on PatientsLikeMe?


Age
Age Proportion # of patients
<20 42
20s 786
30s 2195
40s 3414
50s 2841
60s 1250
70+ 204
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3135
20-29 years 1257
30-39 years 693
40-49 years 344
50-59 years 79
60-69 years 11
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 1100
Female 9668

Types
Condition Types Proportion # of patients
Chronic migraine (>15 migraines/month) 109
Complex confusional migraine 18
Complex migraine 41
Hemiplegic migraine 18
Menstrual migraine 36
Migraine with brainstem aura (basilar migraine) 42
Mixed tension migraine 52
Ocular migraine 32
Silent migraine 18
Vestibular migraine 11
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6550
Not Diagnosed 419

These charts show data from migraine patients who have completed their condition history
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