Eosinophilic fasciitis

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What is eosinophilic fasciitis?

Eosinophilic fasciitis is a very rare syndrome in which muscle tissue underneath the skin, called fascia, becomes swollen and thick. Rapid swelling can occur in the hands, arms, legs, and feet.

Common symptoms reported by people with eosinophilic fasciitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with eosinophilic fasciitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
3
Tried for
eosinophilic fasciitis (3)
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
2
Tried for
eosinophilic fasciitis (2)
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
1
Tried for
eosinophilic fasciitis (1)
Treatment name(s)

(Metoject)
Type
Prescription Drug
How many have tried
1
Tried for
eosinophilic fasciitis (1)

Data from patients with eosinophilic fasciitis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with eosinophilic fasciitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Deltasone)
Perceived effectiveness
for eosinophilic fasciitis (3 evaluations)
Side effects
brain fog constant hunger 10 more
Total evaluations
3
Tried for
eosinophilic fasciitis (3)
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
eosinophilic fasciitis (2)
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for eosinophilic fasciitis (1 evaluation)
Side effects
Total evaluations
1
Tried for
eosinophilic fasciitis (1)
Treatment name(s)

(Metoject)
Perceived effectiveness
for eosinophilic fasciitis (1 evaluation)
Side effects
Total evaluations
1
Tried for
eosinophilic fasciitis (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with eosinophilic fasciitis, who reported starting treatments within the last 5 years.
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Who has eosinophilic fasciitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 4
40s 5
50s 15
60s 7
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 3
40-49 years 0
50-59 years 3
60-69 years 2
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 10
Female 29

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12
Not Diagnosed 0

These charts show data from eosinophilic fasciitis patients who have completed their condition history
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