Glycogen storage disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is glycogen storage disease?

Glycogen storage disease is an inherited disorder caused by the buildup of a complex sugar called glycogen in the body's cells. The accumulation of glycogen in certain organs and tissues, especially the liver, kidneys, and small intestines, impairs their ability to function normally.

Common symptoms reported by people with glycogen storage disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with glycogen storage disease

No data

Let’s build this page together! When you share what it’s like to have glycogen storage disease through your profile, those stories and data appear here too.

Got a question about living with glycogen storage disease? Members in the forum might have the answers.

Compare treatments taken by people with glycogen storage disease

No data

Let’s build this page together! When you share what it’s like to have glycogen storage disease through your profile, those stories and data appear here too.

Got a question about living with glycogen storage disease? Members in the forum might have the answers.

Who has glycogen storage disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 4
30s 2
40s 3
50s 5
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

65% Female
35% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8
Not Diagnosed 0

These charts show data from glycogen storage disease patients who have completed their condition history
Last updated: