Septo optic dysplasia

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What is septo optic dysplasia?

Septo-Optic Dysplasia is defined by three characteristics: underdevelopment of the optic nerve (visual impairment), abnormal formation of structures along the midline of the brain (abnormal brain development), and pituitary hypoplasia (deficiency of essential hormones).

Common symptoms reported by people with septo optic dysplasia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with septo optic dysplasia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cortef)
Type
Prescription Drug
How many have tried
1
Tried for
septo optic dysplasia (1)
Treatment name(s)

(Synthroid)
Type
Prescription Drug
How many have tried
1
Tried for
septo optic dysplasia (1)

Data from patients with septo optic dysplasia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with septo optic dysplasia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cortef)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
septo optic dysplasia (1)
Treatment name(s)

(Synthroid)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
septo optic dysplasia (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with septo optic dysplasia, who reported starting treatments within the last 5 years.
Last updated:

Who has septo optic dysplasia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 2
30s 5
40s 3
50s 1
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 0
30-39 years 1
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

75% Female
25% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6
Not Diagnosed 1

These charts show data from septo optic dysplasia patients who have completed their condition history
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