Pediatric infection-triggered autoimmune neuropsychiatric disorder

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What is pediatric infection-triggered autoimmune neuropsychiatric disorder?

Pediatric infection-triggered autoimmune neuropsychiatric disorder (PITAND), is characterized by the development of OCD-like symptoms, tics, and neuropsychiatric symptoms after a viral or bacterial infection. It is often grouped with PANS and PANDAS, although the terms may not be interchangeable.

Common symptoms reported by people with pediatric infection-triggered autoimmune neuropsychiatric disorder

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with pediatric infection-triggered autoimmune neuropsychiatric disorder

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Migralex)
Type
Over the Counter Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1)
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Breath Meditation)
Type
Complementary and Alternative Medicine
How many have tried
1
Tried for
Insomnia (1) Stress (1)
Treatment name(s)

(Nature's Bounty Melatonin)
Type
Supplement
How many have tried
1
Tried for
Insomnia (1)
Treatment name(s)

(Namenda)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Treatment name(s)

(Seroquel)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)

Data from patients with pediatric infection-triggered autoimmune neuropsychiatric disorder, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with pediatric infection-triggered autoimmune neuropsychiatric disorder

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Migralex)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
Pain (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
Pain (1)
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for pediatric infection-triggered autoimmune neuropsychiatric disorder (1 evaluation)
Side effects
Skin sensitivity to sun (Photosensitivity)
Total evaluations
1
Treatment name(s)

(Vistaril)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Total evaluations
1
Tried for
Insomnia (1)
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for pediatric infection-triggered autoimmune neuropsychiatric disorder (2 evaluations)
Side effects
Flu like symptoms Headaches
Total evaluations
2
Treatment name(s)

(Breath Meditation)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Insomnia (1) Stress (1)
Treatment name(s)

(Nature's Bounty Melatonin)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Total evaluations
1
Tried for
Insomnia (1)
Treatment name(s)

(Namenda)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (1)
Treatment name(s)

(Inderal)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (1)
Treatment name(s)

(Seroquel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with pediatric infection-triggered autoimmune neuropsychiatric disorder, who reported starting treatments within the last 5 years.
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Who has pediatric infection-triggered autoimmune neuropsychiatric disorder on PatientsLikeMe?


Age
Age Proportion # of patients
<20 8
20s 3
30s 4
40s 1
50s 2
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 2
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

60% Female
40% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 7
Not Diagnosed 1

These charts show data from PITAND patients who have completed their condition history
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