Stevens Johnson syndrome

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What is Stevens Johnson syndrome?

Stevens–Johnson syndrome (SJS) is a life-threatening condition affecting the skin in which cell death causes the epidermis to separate from the dermis. The syndrome is thought to be a hypersensitivity complex affecting the skin and the mucous membranes.

Common symptoms reported by people with Stevens Johnson syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Stevens Johnson syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Actiq)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
pain (1)

Data from patients with Stevens Johnson syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Stevens Johnson syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (2)
Treatment name(s)

(Vistaril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (2)
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Valium)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
decreased sex drive (libido) hunger
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(Lexapro)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Actiq)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Stevens Johnson syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has Stevens Johnson syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 7
30s 12
40s 13
50s 16
60s 5
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 8
20-29 years 4
30-39 years 4
40-49 years 3
50-59 years 1
60-69 years 1
70+ years 0

Sex

Distribution of sex

85% Female
15% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 23
Not Diagnosed 2

These charts show data from Stevens Johnson syndrome patients who have completed their condition history
Last updated: