Ullrich congenital muscular dystrophy

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What is Ullrich congenital muscular dystrophy?

Ullrich congenital muscular dystrophy (UCMD) is a type of congenital muscular dystrophy. Specific characteristics include hyper flexibility in hands and feet but tightness in other joints, such as elbows or hip. Often, they have a rigid/stiff spine and a tendency towards respiratory issues.

Common symptoms reported by people with Ullrich congenital muscular dystrophy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Ullrich congenital muscular dystrophy

No data

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Compare treatments taken by people with Ullrich congenital muscular dystrophy

No data

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Who has Ullrich congenital muscular dystrophy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 1
30s 0
40s 0
50s 1
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 0
Female 3

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1
Not Diagnosed 0

These charts show data from Ullrich congenital muscular dystrophy patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have Ullrich congenital muscular dystrophy through your profile, those stories and data appear here too.

Got a question about living with Ullrich congenital muscular dystrophy? Members in the forum might have the answers.