Alport syndrome

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What is Alport syndrome?

Alport's Syndrome, also known as hereditary nephritis, is a genetic syndrome that affects males more often than females and is associated with progressive renal insufficiency, hearing loss and abnormalities of the eyes.

Common symptoms reported by people with Alport syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Alport syndrome

No data

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Got a question about living with Alport syndrome? Members in the forum might have the answers.

Compare treatments taken by people with Alport syndrome

No data

Let’s build this page together! When you share what it’s like to have Alport syndrome through your profile, those stories and data appear here too.

Got a question about living with Alport syndrome? Members in the forum might have the answers.

Who has Alport syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 7
30s 6
40s 12
50s 16
60s 8
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 7
20-29 years 2
30-39 years 0
40-49 years 1
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 29
Female 22

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 13
Not Diagnosed 1

These charts show data from Alport syndrome patients who have completed their condition history
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