What is Rett syndrome?

Rett syndrome, a neurodevelopmental disorder that affects girls almost exclusively, is characterized by normal early growth and development followed by a slowing of development, distinctive hand movements, slowed brain and head growth, problems with walking, seizures and intellectual disability.

How do members experience Rett syndrome?

Top 5 symptoms reported by people with Rett syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Rett syndrome*

Who has Rett syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 3
40s 4
50s 1
60s 2
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 3
Female 9