Rett syndrome

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What is Rett syndrome?

Rett syndrome, a neurodevelopmental disorder that affects girls almost exclusively, is characterized by normal early growth and development followed by a slowing of development, distinctive hand movements, slowed brain and head growth, problems with walking, seizures and intellectual disability.

Common symptoms reported by people with Rett syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Rett syndrome

No data

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Got a question about living with Rett syndrome? Members in the forum might have the answers.

Compare treatments taken by people with Rett syndrome

No data

Let’s build this page together! When you share what it’s like to have Rett syndrome through your profile, those stories and data appear here too.

Got a question about living with Rett syndrome? Members in the forum might have the answers.

Who has Rett syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 3
30s 3
40s 2
50s 1
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 3
Female 6

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 0

These charts show data from Rett syndrome patients who have completed their condition history
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