Erdheim-Chester Disease

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What is Erdheim-Chester Disease?

Erdheim-Chester disease is a rare condition in which there is excessive production and accumulation of histiocytes, which normally fight infection. The histiocytes accumulate in the loose connective tissue and bone, making these tissues abnormally thick, dense, and fibrous.

Common symptoms reported by people with Erdheim-Chester Disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Erdheim-Chester Disease

No data

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Got a question about living with Erdheim-Chester Disease? Members in the forum might have the answers.

Compare treatments taken by people with Erdheim-Chester Disease

No data

Let’s build this page together! When you share what it’s like to have Erdheim-Chester Disease through your profile, those stories and data appear here too.

Got a question about living with Erdheim-Chester Disease? Members in the forum might have the answers.

Who has Erdheim-Chester Disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 0
50s 2
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 1
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 1

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 0

These charts show data from Erdheim-Chester Disease patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have Erdheim-Chester Disease through your profile, those stories and data appear here too.

Got a question about living with Erdheim-Chester Disease? Members in the forum might have the answers.