Stickler Syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Stickler Syndrome?

Stickler syndrome is a connective tissue disorder, a genetic malfunction in the tissue that connects bones, eyes, and ears. This disorder is associated with problems of vision, hearing, bone & joint, facial and cleft palate.

Common symptoms reported by people with Stickler Syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Stickler Syndrome

No data

Let’s build this page together! When you share what it’s like to have Stickler Syndrome through your profile, those stories and data appear here too.

Got a question about living with Stickler Syndrome? Members in the forum might have the answers.

Compare treatments taken by people with Stickler Syndrome

No data

Let’s build this page together! When you share what it’s like to have Stickler Syndrome through your profile, those stories and data appear here too.

Got a question about living with Stickler Syndrome? Members in the forum might have the answers.

Who has Stickler Syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 5
30s 5
40s 3
50s 3
60s 2
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 8
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 17

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9
Not Diagnosed 3

These charts show data from Stickler Syndrome patients who have completed their condition history
Last updated: