Interstitial lung disease

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What is interstitial lung disease?

Interstitial lung disease is the name for a large group of diseases that inflame or scar the lungs. The inflammation and scarring make it hard to get enough oxygen. The scarring is called pulmonary fibrosis. Some types of interstitial lung disease have no known cause.

Common symptoms reported by people with interstitial lung disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with interstitial lung disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Homozon Oxygen Therapy)
Type
Prescription Drug
How many have tried
58
Tried for
interstitial lung disease (58)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
33
Tried for
interstitial lung disease (33)
Treatment name(s)
Type
Physical Therapy
How many have tried
13
Tried for
interstitial lung disease (13)
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
10
Tried for
interstitial lung disease (10)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
9
Treatment name(s)

(VATS Lung Biopsy)
Type
Procedures
How many have tried
6
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
5
Treatment name(s)

(Cytoxan)
Type
Prescription Drug
How many have tried
4
Treatment name(s)

(Albuterol Inhaler)
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (3)

Data from patients with interstitial lung disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with interstitial lung disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Homozon Oxygen Therapy)
Perceived effectiveness
for interstitial lung disease (23 evaluations)
Side effects
dry nose dry mouth 3 more
Total evaluations
30
Tried for
interstitial lung disease (58)
Treatment name(s)

(Deltasone)
Perceived effectiveness
for interstitial lung disease (19 evaluations)
Side effects
weight gain elevated blood sugar (hyperglycemia) 25 more
Total evaluations
23
Tried for
interstitial lung disease (33)
Treatment name(s)
Perceived effectiveness
for interstitial lung disease (7 evaluations)
Side effects
fatigue pain in feet
Total evaluations
7
Tried for
interstitial lung disease (13)
Treatment name(s)

(CellCept)
Perceived effectiveness
for interstitial lung disease (8 evaluations)
Side effects
fatigue high cholesterol (hypercholesterolemia) 4 more
Total evaluations
8
Tried for
interstitial lung disease (10)
Treatment name(s)

(Imuran)
Perceived effectiveness
for interstitial lung disease (6 evaluations)
Side effects
decreased lung capacity gas pain 5 more
Total evaluations
9
Treatment name(s)

(VATS Lung Biopsy)
Perceived effectiveness
for interstitial lung disease (2 evaluations)
Side effects
Hospitalization Pain 2 more
Total evaluations
3
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for interstitial lung disease (1 evaluation)
Side effects
stomach pain upset stomach
Total evaluations
4
Treatment name(s)

(Cytoxan)
Perceived effectiveness
for interstitial lung disease (4 evaluations)
Side effects
elevated liver enzymes fatigue 3 more
Total evaluations
4
Treatment name(s)

(Albuterol Inhaler)
Perceived effectiveness
No evaluations
Side effects
shakiness
Total evaluations
1
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with interstitial lung disease, who reported starting treatments within the last 5 years.
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Who has interstitial lung disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 5
30s 21
40s 68
50s 101
60s 122
70+ 80
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 7
30-39 years 22
40-49 years 43
50-59 years 41
60-69 years 25
70+ years 6

Sex

Distribution of sex

74% Female
26% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 205
Not Diagnosed 8

These charts show data from interstitial lung disease patients who have completed their condition history
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