What is Birt-Hogg-Dube syndrome?

Birt-Hogg-Dubé syndrome is a rare disorder that affects the skin and lungs and increases the risk of certain types of tumors. The condition is characterized by multiple noncancerous (benign) skin tumors, particularly on the face, neck, and upper chest.

How do members experience Birt-Hogg-Dube syndrome?

Top 5 symptoms reported by people with Birt-Hogg-Dube syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Birt-Hogg-Dube syndrome*

Who has Birt-Hogg-Dube syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 0
40s 3
50s 3
60s 2
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 1
Female 7