Hereditary palmoplantar keratoderma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is hereditary palmoplantar keratoderma?

Hereditary palmoplantar keratoderma (PPK) an inherited disorder characterized by thickening of the palms and the soles of individuals who are affected. There are 3 types of inherited forms including Diffuse PPK, Focal PPK, and Punctate PPK.

Common symptoms reported by people with hereditary palmoplantar keratoderma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with hereditary palmoplantar keratoderma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Catapres TTS patch)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Retin-A)
Type
Prescription Drug
How many have tried
1

Data from patients with hereditary palmoplantar keratoderma, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with hereditary palmoplantar keratoderma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Catapres TTS patch)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
lightheadedness
Total evaluations
2
Tried for
anxious mood (1)
Treatment name(s)

(Retin-A)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hereditary palmoplantar keratoderma, who reported starting treatments within the last 5 years.
Last updated:

Who has hereditary palmoplantar keratoderma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 8
30s 9
40s 9
50s 12
60s 5
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 13
20-29 years 1
30-39 years 1
40-49 years 1
50-59 years 2
60-69 years 1
70+ years 0

Sex

Distribution of sex

72% Female
28% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 16
Not Diagnosed 4

These charts show data from hereditary palmoplantar keratoderma patients who have completed their condition history
Last updated: