Alpha 1 Antitrypsin Deficiency

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What is Alpha 1 Antitrypsin Deficiency?

Alpha-1 antitrypsin deficiency is an inherited disorder that may cause lung disease and liver disease. People with alpha-1 antitrypsin deficiency usually develop the first signs and symptoms of lung disease between ages 20 and 50.

Common symptoms reported by people with Alpha 1 Antitrypsin Deficiency

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Alpha 1 Antitrypsin Deficiency

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Albuterol Inhaler)
Type
Prescription Drug
How many have tried
1
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Treatment name(s)

(Prolastin C)
Type
Prescription Drug
How many have tried
1
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Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1) Pain (1)
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Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
1
Tried for
Fatigue (1)
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Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
Anxious mood (1) Pain (1)
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Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
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Treatment name(s)

(Sinequan)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Duragesic)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)
Type
Equipment
How many have tried
1
Tried for
Pain (1)

Data from patients with Alpha 1 Antitrypsin Deficiency, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Alpha 1 Antitrypsin Deficiency

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Albuterol Inhaler)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Check to add this treatment to your profile
Treatment name(s)

(Prolastin C)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Check to add this treatment to your profile
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Drowsiness
How many evaluations
1
Tried for
Insomnia (1) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Nuvigil)
Perceived effectiveness
for Fatigue (1 evaluation)
Side effects
Jittery feeling
How many evaluations
1
Tried for
Fatigue (1)
Check to add this treatment to your profile
Treatment name(s)

(Marijuana)
Perceived effectiveness
for Anxious mood (2 evaluations)
Side effects
How many evaluations
2
Tried for
Anxious mood (1) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Sinequan)
Perceived effectiveness
No evaluations
Side effects
Nightmares Weight gain
How many evaluations
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Duragesic)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (1)

Data from patients with Alpha 1 Antitrypsin Deficiency, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Alpha 1 Antitrypsin Deficiency on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 9
30s 14
40s 19
50s 35
60s 29
70+ 5

Sex

Distribution of sex

65% Female
35% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 10
20-29 years 12
30-39 years 12
40-49 years 6
50-59 years 10
60-69 years 3
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 70
Not Diagnosed 8

These charts show data from Alpha 1 Antitrypsin Deficiency patients who have completed their condition history
Last updated: