Alpha 1 antitrypsin deficiency

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What is alpha 1 antitrypsin deficiency?

Alpha-1 antitrypsin deficiency is an inherited disorder that may cause lung disease and liver disease. People with alpha-1 antitrypsin deficiency usually develop the first signs and symptoms of lung disease between ages 20 and 50.

Common symptoms reported by people with alpha 1 antitrypsin deficiency

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with alpha 1 antitrypsin deficiency

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Prolastin C)
Type
Prescription Drug
How many have tried
2
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1) Pain (1)
Treatment name(s)
Type
Equipment
How many have tried
1
Tried for
Pain (1)

Data from patients with alpha 1 antitrypsin deficiency, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with alpha 1 antitrypsin deficiency

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Prolastin C)
Perceived effectiveness
for alpha 1 antitrypsin deficiency (2 evaluations)
Side effects
Shaky hands
Total evaluations
2
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Drowsiness
Total evaluations
1
Tried for
Insomnia (1) Pain (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with alpha 1 antitrypsin deficiency, who reported starting treatments within the last 5 years.
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Who has alpha 1 antitrypsin deficiency on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 9
30s 17
40s 16
50s 38
60s 35
70+ 10
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 14
30-39 years 13
40-49 years 8
50-59 years 11
60-69 years 3
70+ years 0

Sex

Distribution of sex

66% Female
34% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 78
Not Diagnosed 9

These charts show data from alpha 1 antitrypsin deficiency patients who have completed their condition history
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