Alpha 1 Antitrypsin Deficiency

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What is Alpha 1 Antitrypsin Deficiency?

Alpha-1 antitrypsin deficiency is an inherited disorder that may cause lung disease and liver disease. People with alpha-1 antitrypsin deficiency usually develop the first signs and symptoms of lung disease between ages 20 and 50.

Common symptoms reported by people with Alpha 1 Antitrypsin Deficiency

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Alpha 1 Antitrypsin Deficiency

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
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Treatment name(s)

(Prolastin C)
Type
Prescription Drug
How many have tried
1
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Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
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Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
Insomnia (1) Pain (1)
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Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
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Treatment name(s)

(Duragesic)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
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Treatment name(s)
Type
Equipment
How many have tried
1
Tried for
Pain (1)
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Treatment name(s)

(Toradol)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)

Data from patients with Alpha 1 Antitrypsin Deficiency, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Alpha 1 Antitrypsin Deficiency

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Prolastin C)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Check to add this treatment to your profile
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (1 evaluation)
Side effects
Drowsiness
Total evaluations
1
Tried for
Insomnia (1) Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Flexeril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Duragesic)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Toradol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Alpha 1 Antitrypsin Deficiency, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Who has Alpha 1 Antitrypsin Deficiency on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 9
30s 17
40s 18
50s 37
60s 32
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 13
30-39 years 13
40-49 years 8
50-59 years 10
60-69 years 3
70+ years 0

Sex

Distribution of sex

65% Female
35% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 76
Not Diagnosed 9

These charts show data from Alpha 1 Antitrypsin Deficiency patients who have completed their condition history
Last updated: