Intellectual disability

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is intellectual disability?

Intellectual disability is characterized both by a significantly below-average score on a test of mental ability or intelligence and by limitations in the ability to function in areas of daily living, such as navigating social situations and school activities.

Common symptoms reported by people with intellectual disability

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with intellectual disability

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
intellectual disability (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Stresam)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Aleve)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)

Data from patients with intellectual disability, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with intellectual disability

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
No evaluations
Side effects
drunk feeling migraine headaches 1 more
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Abilify)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
stiffness in jaw tremor in hands
Total evaluations
3
Tried for
depressed mood (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
bitter taste
Total evaluations
3
Tried for
intellectual disability (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Stresam)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Aleve)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with intellectual disability, who reported starting treatments within the last 5 years.
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Who has intellectual disability on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 10
30s 13
40s 5
50s 2
60s 4
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 12
20-29 years 0
30-39 years 1
40-49 years 1
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 24
Female 16

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 16
Not Diagnosed 6

These charts show data from intellectual disability patients who have completed their condition history
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